Barcelona

I had been living in Barcelona since December 2005, where my older sister was already established with her husband. My mum retired shortly afterwards and moved one year later to be closer to us. I never felt so good; I removed my protective corset and have less epilepsy attacks with deletion of 3 drugs. The lesions remain stable, whereas some of them could have improved slightly with more bone density. As a result, my doctors decided on April 2008 that I should stop taking the treatment, the disease being stopped.

The AFAS association, created by my family and their friends, grew since 2004 and recently became a Spanish one, named ALEG. I would like to thank my wonderful family and all the people who helped me and who is helping other affected persons. I would also like to thank my doctors, Dr. Klement, Dr. Lopez, and Dr. Baselga for their constant efforts and dedication and also thank associations like www.anomalievasculaire.org , www.lgdalliance.org  and www.gorhams.dk.