ALEG association now replaces AFAS, the first French and European association on Gorham's affected people. AFAS association was created in November 2004 in Nancy, France, to help Hansel. At the time, the disease was very active and Hansel's family needed help to go to Boston, where a specialized team was working on the disease in order to develop an adequate treatment. This association was very active and directed by a group of dynamic and dedicated people. Different events were held in order to allow Hansel to go to Boston, thanks to the generosity of donations. Following this first step, and after the creation of a website, AFAS started to have more importance and visibility globally. Progressively, the association helped, psychologically and financially, other patients affected by the disease by putting them in contact with appropriate doctors.

The moving of Hansel's family in Spain, where Hansel is treated since 2005, and the management and administration difficulties due to distance, made more difficult to run AFAS. The treatment of Gorhams' patients as well as Dr. Lopez Gutierrez availability in Spain were a decisive factor in creating a Spanish association that would follow-up the steps initiated by AFAS. After a General Assembly in February 2008, AFAS was dissolved in order to give birth to ALEG, based in Barcelona. ALEG's objectives are identical to AFAS.

This association is open to all people desiring to bring their help in supporting Gorham's patients.

Thank you again to all AFAS members that brought help and support over the past few years.